IMPOWER International Patient Registry
The Intestinal Malrotation Patient Outcomes and WEllness Registry (IMPOWER) is a patient-generated registry for intestinal malrotation for patients living outside the US.
Welcome to the Intestinal Malrotation Patient Outcomes and WEllness Registry (IMPOWER) International.
Have you or your child been diagnosed by a clinician with Intestinal Malrotation?
The purpose of this survey is to capture information on the symptoms, diagnosis, treatment, and follow-up of individuals with malrotation and to serve as a contact list for future research study opportunities.
You are eligible to participate if you:
- Have been told by a clinician that either YOU or your CHILD have intestinal malrotation. The child must be currently 17 years old or younger or deceased.
- You currently live OUTSIDE of the United States.
What will you be asked to do?
You will be asked to complete an online survey.
To begin the registration process CLICK HERE
For more information contact Katie Corcoran, Ph.D., Principal Investigator
Department of Sociology and Anthropology | West Virginia University
